Living with Ataxia

We're here for your support.

LivingWithAtaxia.org is an online support group for those living with hereditary or non-hereditary ataxia.

Members

  • BERNARD PURCE
  • marie taaffe
  • Kati
  • Nick Ormsby
  • DAVE TAYLOR
  • Lorinn Coburn
  • Roy Yamamoto
  • Katie Wheeler
  • Sarah-Jane Squire
  • Carol Gow
  • Amy Nakai
  • Alan Thomas
  • Charlie Boyce
  • Rusha' B. Watson
  • Jackie Roberts
  • jason conrad jones

Photos

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Videos

Groups

Events

In The News

March 2010: Living with Ataxia on Race Online 2012
1/23/10: LivingWithAtaxia Featured on SavantMD.com
8/31/09: LivingWithAtaxia Mentioned on About.com
8/12/09: OrganizedWisdom.com's Favorite Ataxia Community OrganizedWisdom.com.

Your Community Managers

Kati
Alan
Ben
Scott

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This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.

Patient Communities
* Aicardi Syndrome
* Adrenoleukodystrophy (ALD)
* Arteriovenous Malformation (AVM)
* Ataxia (International)
* Ataxia (U.S.A.)
* Atrial Septal Defect
* Brain Aneurysms
* Chiari Malformation
* Crohn's Disease
* Fibromyalgia
* Metastatic Breast Cancer
* Myositis
* Primary Sclerosing Cholangitis (PSC)
* Tourette's Syndrome
* Trigeminal Neuralgia (TN)
* Von Willebrand's Disease (VWD)
 

Latest Activity

Alan Thomas left a comment for BERNARD PURCE
2 hours ago
BERNARD PURCE left a comment for marie taaffe
3 hours ago
BERNARD PURCE is now a member of Living with Ataxia
Welcome Them!
4 hours ago
Kati replied to Carol Gow's discussion 'What a day!!'
I'm not sure which is worse when they don't relaise you are disabled or when you are more obviously disabled and get talked to like a child! When mine wasn't as bad but used mobility scooter for distance had once gone down to sainsburys on edge of…
4 hours ago
jose luis left a comment for Roy Yamamoto
14 hours ago
jose luis left a comment for Katie Wheeler
14 hours ago
Carol Gow added a discussion
What a day!!
My fun started at 3.40 this morning. I got out of bed fine, then fell. It took me ages to get up. It was the sort of fall you know is happening so you are prepared, sort off. Dignity in tack I eventually returned to bed only to be unable to go back…
17 hours ago
Carol Gow replied to Carol Gow's discussion 'Riding'
Hello Lorinn Thank you for your kind comments. I can't wait, it really is an adventure. I'll keep you informed. Mind you I have fallen before having Ataxia so I don't hold out much hope. When I came off the last time (thank you motorist) I swear the…
18 hours ago
Alan Thomas added 2 blog posts
18 hours ago
Lorinn Coburn replied to Carol Gow's discussion 'Riding'
You go, girl! That is so cool, Carol. Way to make something good happen! Be sure to have someone take a photo, and post it, ok? Enjoy your new adventure. Lorinn
23 hours ago
Alan Thomas left a comment for Rusha' B. Watson
yesterday
Iain Stevenson left a comment for Rusha' B. Watson
yesterday
Carol Gow replied to Carol Gow's discussion 'Riding'
Hello everyone I have found a centre that does indvidual classes and classes for 6 people. It's quite near me! I have e-mailed and they have responded, I have to ring after the 9th, make an appointment and call at the centre to talk to them and to s…
yesterday
Rusha' B. Watson added a video
World's First Double Backflip on a Wheelchair
Aaron "Wheelz" Fotheringham landed the world's first double backflip on a wheelchair on August 26, 2010.Filmed: Dave Metty Brandon SchmidtEdite...
yesterday
jason conrad jones added a discussion
i had thyis email
sent from one of my contacts that works alongside me plz read it as it affects all of us winterfuel payments directgov
yesterday
Carol Gow replied to Carol Gow's discussion 'Riding'
Hello Alan Thank you. It transpires the RDA have a centre not far from me.I have e-mailed them and am awaiting a reply. Regards Carol
yesterday

Top Content 

1

What a day!!

Posted by Carol Gow on September 3, 2010
2

a bad weekend

Added by Amy Nakai on September 1, 2010

Blog Posts

Alan Thomas

My friend Sarah needs YOUR vote in the BA Great Britons Award

Posted by Alan Thomas on September 3, 2010 at 2:44pm

Alan Thomas

THANK YOU from Race online2012 (Alan)

Posted by Alan Thomas on September 2, 2010 at 3:04pm

Karen Dixon

Blood test results

Posted by Karen Dixon on September 1, 2010 at 9:36am

Forum

Carol Gow

What a day!! 1 Reply

Started by Carol Gow. Last reply by Kati 4 hours ago.

Carol Gow

Riding 8 Replies

Started by Carol Gow. Last reply by Carol Gow 18 hours ago.

jason conrad jones

i had thyis email

Started by jason conrad jones 1 day ago.

Ride Ataxia

Teammates in the news

Team FARA on the News!

DONT STOP ME NOW (Alan's blog)

Busy making freinds (at No 10)

Photo Diary (timeless)

My LIfe with Ataxia (Kati's Blog)

New iPad mini rumours

Inca’s Interactive Puzzle Review – Nina Ottosson Puzzles

Dragon Demo

 
 
 

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In the ZONE

A Website raising funds for Ataxia uk while raising awareness, of Ataxia
theincrediblewebsite

Richard and Tom are raising money for Ataxia (Ataxia UK) which a close friend of ours, James Downie, unfortunately suffers from.
RTA
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