Living with Ataxia

We're here for your support.

LivingWithAtaxia.org is an online support group for those living with hereditary or non-hereditary ataxia.

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Events

In The News

1/23/10: LivingWithAtaxia Featured on SavantMD.com
8/31/09: LivingWithAtaxia Mentioned on About.com
8/12/09: OrganizedWisdom.com's Favorite Ataxia Community OrganizedWisdom.com.

Members

  • Ironside
  • Vicki Pedler
  • Kati
  • Carol Gow
  • Lit Smith
  • Eric D. Kroll
  • Lorraine Lerner
  • nati cepeda
  • Helen Webb
  • Alison
  • cathy warner
  • annette bond
  • Fiona Elizabeth Bunce
  • Shaun Bond
  • Marie Turner
  • jason spencer

Your Community Managers

Kati
Alan Thomas
Ben Munoz
Scott Orn

Ride Ataxia

NorCal Jersey

Row the Atlantic (AUK)

NEARLY THERE

Day 71 - 75 Miles to go!!!!!!

DONT STOP ME NOW

Candle, Candle, Multi ended Candle

Fuzzy, Head and Blind Chatterbox

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This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.

Patient Communities
* Aicardi Syndrome
* Adrenoleukodystrophy (ALD)
* Arteriovenous Malformation (AVM)
* Ataxia (International)
* Ataxia (U.S.A.)
* Brain Aneurysms
* Chiari Malformation
* Crohn's Disease
* Fibromyalgia
* Myositis
* Trigeminal Neuralgia (TN)
 

Latest Activity

Vicki Pedler is now a member of Living with Ataxia
Welcome Them!
2 hours ago
Lit Smith left a comment for Carol Gow
5 hours ago
Carol Gow left a comment for Lit Smith
6 hours ago
Helen Webb added a blog post
Well after 8 months of 2 lots of MRI's, E.M.G. nerve Conduction test,Walking in straight lines (which I cant do ) and being told I am sure it's not Ataxia It is just vertigo, I finally got my Genetic blood test in January, and the results on the 16t…
17 hours ago
Helen Webb updated their profile
17 hours ago
Helen Webb Confirmed at last by blood test, but not by Neurologist....... SCA6.. it is then, and not Vertigo!!!
18 hours ago
Alan Thomas commented on Alan Thomas's event '****** Row The Atlantic ****** for Ataxia UK'
THE BOYS HAVE DONE IT WELL DONE http://www.rowingtheatlantic.com/
19 hours ago
Alison added 11 photos
7 more…
20 hours ago
Carol Gow left a comment for Alison
23 hours ago
cathy warner left a comment for Lit Smith
23 hours ago
Kati added a blog post
As you may have read on previous blogs, I had some remaining issues with Lightwriter SL40 for some time after purchase. I am happy to say they have all been resolved! My SL40 was one of the first off the production lines and we initially had pro…
23 hours ago
Lit Smith left a comment for cathy warner
yesterday

Blog Posts

Helen Webb

SCA6 Finally Genetically Confirmed

Posted by Helen Webb on March 18, 2010 at 3:31pm

Kati

Update on Lightwriter

Posted by Kati on March 18, 2010 at 11:54am

Ben Munoz

How to Help LivingWithAtaxia.org

Posted by Ben Munoz on March 15, 2010 at 11:30am

Forum

Marie Turner

DLA and I'm not normal 23 Replies

Started by Marie Turner. Last reply by Carol Gow 1 day ago.

Alan Thomas

**************** Row the Atlantic TODAY ***********

Started by Alan Thomas Mar 17.

Alan Thomas

MARILENA WILKINSON Atacama Crossing (Chile) 2010:

Started by Alan Thomas Mar 16.

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Richard and Tom are raising money for Ataxia (Ataxia UK) which a close friend of ours, James Downie, unfortunately suffers from.
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