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If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.

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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

handwriting solution?

Started by Jan in General. Last reply by Lori Rich 1 hour ago. 10 Replies

So I have problems with handwriting, fill in a form, label post envelope...I thing that a solution may be a gadget which look like a stamp but has small keyboard on itself and small display. You write a word, on it press a button and you could stamp…Continue

Hidden Disability

Started by Bruce in General 22 hours ago. 0 Replies

I have recently come across a Facebook group called "Hidden Disability."  I think that the business cards that they suggest could be very useful.Continue

BioBlast Pharma Announces Positive in vivo Preclinical Proof-of-Concept Results of Its Cabaletta Platform in Spinocerebellar Ataxia Type 3 (SCA3)

Started by Alan Thomas in General yesterday. 0 Replies

TEL AVIV, Israel, March 30, 2015 (GLOBE NEWSWIRE) -- BioBlast Pharma Ltd. (Nasdaq:ORPN), a clinical-stage, orphan disease-focused biotechnology company announced today…Continue

Tags: Platform, Cabaletta, Its, Spinocerebellar, Ataxia

Researchers find new link between neurodegenerative diseases and abnormal immune responses

Started by Alan Thomas in General yesterday. 0 Replies

Researchers find new link between neurodegenerative diseases and abnormal immune responsesMar 30, ImmunologyResearchers from McMaster University and the Icahn School of Medicine at Mount Sinai, New York have discovered that a protein associated with…Continue

Tags: and, abnormal, immune, response, diseases

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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.

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Latest Activity

Ozzy posted a status
"tres' bien..mes amis :-)"
1 hour ago
Lori Rich replied to Jan's discussion handwriting solution?
"Good idea, Jan!  I've tried to think of something that would work for us.  You need to make a prototype, patent it, and make your $millions!"
1 hour ago
Sarah left a comment for TJ
"Can't meet this week at all, Grandaughtwr (13) coming tomorrow, plus soon to descend are 9 guests Thinking of the Erik after ......?"
2 hours ago
imlatina posted a blog post

ataxians in Spanish speaking countries

Any 'ataxians' from South America or from the Caribbean?See More
3 hours ago
imlatina liked imlatina's blog post NEW
3 hours ago
Lesleytailford replied to Jan's discussion handwriting solution?
"My partner is the same he was recently diagnosed with progressive cerebella ataxia but every thing is going speech walking it is hard"
5 hours ago

Moderator
dancermom left a comment for D.W
"Welcome, DW, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
6 hours ago
Profile IconD.W and Jay joined Living With Ataxia - Online Support Group
6 hours ago

Top Discussions 

1 sleep

sleep

Posted by heidy on March 25, 2015

2 balance

balance

Posted by Carlous Bobo on March 30, 2015

3 Hormones and Ataxia

Hormones and Ataxia

Posted by Debra White on March 26, 2015

4 handwriting solution?

handwriting solution?

Posted by Jan on April 1, 2015

5 Ataxia Symptoms

Ataxia Symptoms

Posted by Elise's Mom on March 30, 2015

6 Questions regarding SSDI

Questions regarding SSDI

Posted by TinaD on March 22, 2015

7 What were your first symptoms of Joseph Machado Disease?

What were your first symptoms of Joseph Machado Disease?

Posted by sl0826 on March 2, 2015

8 Ataxia

Ataxia

Posted by Jeannie Ball on March 25, 2015

9 A Man's Incomplete Brain Reveals Cerebellum's Role In Thought And Emotion

A Man's Incomplete Brain Reveals Cerebellum's Role In Thought And Emotion

Posted by Alan Thomas on March 17, 2015

10 Je Suis Un Patient     via Eyeforpharma (Barcelona Pharma / patient World conference

Je Suis Un Patient via Eyeforpharma (Barcelona Pharma / patient World conference

Posted by Alan Thomas on March 31, 2015

 
 
 

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Blog Posts

ataxians in Spanish speaking countries

Posted by imlatina on April 1, 2015 at 3:50pm 0 Comments

Any 'ataxians' from South America or from the Caribbean?

NEW

Posted by imlatina on March 30, 2015 at 3:58pm 4 Comments

i'm new here.  does anybody know how fast ataxia symtoms increase?  i was just diagnosed last month. thanks.

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