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for Wales RareDisease Day reception 2014
**** Able Radio **** http://www.ableradio.com/
International Ataxia Awareness Day is September 25
CNN I - Report @ http://ireport.cnn.com/docs/DOC-1037130
The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
Four additional screening tests will be offered to newborn babies in Wales from early 2015. From early next year, “heel prick” blood samples taken from newborn babies will be tested for four additional metabolic disorders; glutaric aciduria type 1,…Continue
Hi all,I am considering traveling to India for Ayurvedic treatment. I had SCA since 90s and was first diagnosed in 1997.Please let me know your thoughts and feedback. Any recommendations?Thanks.Continue
It's been a while since there were any posts relating to this, I can'tfind much information at all.Recently I found a breast lump, had a lumpectomy and was toldafterwards that it was a grade3 cancer. Despite complete removaland no spread to lymph…Continue
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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.
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