Living With Ataxia - Online Support Group

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If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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International Ataxia Awareness Day is September 25th

   International Ataxia Awareness Day is September 25 

CNN I - Report @ http://ireport.cnn.com/docs/DOC-1037130

INTERNATIONAL ATAXIA AWARENESS DAY KIT (IAAD KIT)from NAF link@

http://www.ataxia.org/events/international-ataxia-awareness-day-kit.aspx

What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

Findacure founder will be speaking at the world Orphandrug congress in November via @orphandruganau

Started by Alan Thomas in General 3 hours ago. 0 Replies

Findacure  founder will be speaking at the world Orphandrug congress in November  via @orphandruganauAs the 5th …Continue

Tags: congress, Orphandrug, in, November, @orphandruganau

220 Patient Advocates On Twitter via @JBBC

Started by Alan Thomas in General 4 hours ago. 0 Replies

List of epatients, patient advocates, activists and those who support them. Add your own suggestions to grow this list.…Continue

Tags: Twitter, On, Advocates, Patient, 220

A Strange Form of Cerebellar Ataxia

Started by Marie Turner in General. Last reply by Alan Thomas 4 hours ago. 6 Replies

For the past 6/7 years I have thought I had CA which was officially diagnosed.However I am baffled by some of the symptoms.There is no-one in my support group who has the same.6 or so years ago everything was ok.I go to the Oxford Clinic and the…Continue

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Latest Activity

euniecorn replied to minmay's discussion Moodiness
"Minmay,  I am really sorry that this is happening to you. My dad has ataxia and for many years he was disrespectful and emotionally and physically abusive to my mom. I begged my mom to leave him. As a religious woman, she couldn't. And…"
48 minutes ago
euniecorn left a comment for Alan Thomas
"Hey Alan,  Thanks for the warm welcome! -Eunice"
1 hour ago
euniecorn and Alan Thomas are now friends
1 hour ago

Moderator
Alan Thomas posted a video

Call for a European Year for Rare Diseases 2019

Message from Yann Le Cam, Chief Executive Officer, EURORDIS, calling for a European Year for Rare Diseases 2019
3 hours ago

Moderator
Alan Thomas posted discussions
3 hours ago
Michael posted a blog post

Go On 3! for Ataxia Awareness

I have challenged myself to do the "Tour de Shunk" September 14th in the mountains of north central Pennsylvania.  It is actually a 100 mile ride, but I have only been riding my trike for two months, I am only doing the 50 mile option.  Please help…See More
3 hours ago

Moderator
Alan Thomas left a comment for ChickChick
"Hello and Welcome to this International network. We look forward to your input and sharing our experiences Alan Thomas LWA (UK) Team Ataxia South…"
4 hours ago

Moderator
Alan Thomas left a comment for mark
"Hello and Welcome to this International network. We look forward to your input and sharing our experiences Alan Thomas LWA (UK) Team Ataxia South…"
4 hours ago

Top Discussions 

1 Can you ensure your kids don't get Ataxia?

Can you ensure your kids don't get Ataxia?

Posted by emailmanuj on August 16, 2014

2 Is it just me......

Is it just me......

Posted by Laura J on August 18, 2014

3 A Strange Form of Cerebellar Ataxia

A Strange Form of Cerebellar Ataxia

Posted by Marie Turner on August 22, 2014

4 Thank you

Thank you

Posted by Renee on August 15, 2014

5 Moodiness

Moodiness

Posted by minmay on August 22, 2014

6 Sleep disturbance

Sleep disturbance

Posted by Damo on August 14, 2014

7 Where are you?

Where are you?

Posted by Suzi on August 5, 2014

8 Rare Disease UK receives high commendation at the Communiqué Awards

Rare Disease UK receives high commendation at the Communiqué Awards

Posted by Alan Thomas on August 20, 2014

9 Yale Ataxia Center

Yale Ataxia Center

Posted by Searcher on August 17, 2014

10 joint pain

joint pain

Posted by neta on August 10, 2014

Ride Ataxia

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DONT STOP ME NOW (Alan's blog)

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My LIfe with Ataxia (Kati's Blog)

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Blog Posts

Go On 3! for Ataxia Awareness

Posted by Michael on August 22, 2014 at 2:31pm 0 Comments

I have challenged myself to do the "Tour de Shunk" September 14th in the mountains of north central Pennsylvania.  It is actually a 100 mile ride, but I have only been riding my trike for two months, I am only doing the 50 mile option. …

Continue

WOW

Posted by Diana Grapes on August 11, 2014 at 12:34pm 0 Comments

I had no idea that a young..mother.who has ataxia..had to struggle with..all those things too.

All I can say is..May GOD sustain you!!

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