Living With Ataxia - Online Support Group


If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.


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International Ataxia Awareness Day is September 25th

   International Ataxia Awareness Day is September 25 

CNN I - Report @


What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.


Walk This Way and Rockin for ATAXIA

Started by Jonas Cepkauskas in General 5 hours ago. 0 Replies

To all Chicago and Great Lakes area people,  Fight Ataxia Day is Oct. 4th. Please come out, meet other ataxians, support the cause, and have a great time!!!


Started by Anthony Perkins in General. Last reply by Roz 14 minutes ago. 8 Replies

Hi with my ataxia I've received no support I had to push for help. I've been waiting over ten months for a assessment with atos. Has anyone experienced problems with atos and bwp.?

want to buy a rollator

Started by profvasant in General. Last reply by John "JC" Colyer 6 hours ago. 13 Replies

I had a trivial fall last night while walking to the dining table, and ended up with 3 fractures on my left metatarsals. I want to start using a rollator at home for safer navigation. Any recommendations of model and make from other users would be…Continue

Taith Fawr y Dyn Bach Tina Evans (FA)

Started by Alan Thomas in General on Thursday. 0 Replies

Taith Fawr y Dyn Bach Tina Evans who works at Disability Wales on TV this weekContinue

Tags: Raredisease, S4C, Wales, Disability, Ataxia

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Latest Activity

Roz replied to Anthony Perkins's discussion DWP HELP
"your welcome, not that i've been much help LOL ah well if I could hug you and that 80 year old lady I would :D"
14 minutes ago
Anthony Perkins replied to Anthony Perkins's discussion DWP HELP
"You and your husband didn't need that grief especially for that amount of time. I think people will give up fighting in time. And go away. One elderly lady said to me at Sainsburys go to France speak a different language come back to England…"
20 minutes ago
Roz replied to Anthony Perkins's discussion DWP HELP
"agreed. animals have more rights than we do.. it seems.  Hang in there, keep plugging away and, don't quit until you get satisfaction, it took me a year and a half to get anywhere and a shite load of debt so I couldn't pay my rent,…"
38 minutes ago
Anthony Perkins replied to Anthony Perkins's discussion DWP HELP
"I contacted my social worker all she done is give me the job center number. I even tried c.a.b .like you I feel like what the hell going on .if I were a animal in distress I get help."
1 hour ago
Roz replied to Anthony Perkins's discussion DWP HELP
"get in touch with your local council social worker.. my husband is the sufferer in our family and it was like bashing my head against a brick wall as far as support went until I got them involved"
1 hour ago
rose left a comment for noniefitz
"Thanks for responding! It really is a small world as you're the first person I've ever known that sees the same neuro at U of M. Initially for years I saw Dr. Gillman, but then he retired and I've been seeing Dr. Shakkottai for two…"
1 hour ago
noniefitz left a comment for rose
"I do live in Mount Pleasant. I see the same Dr. at U of M. I actually see him Monday. I also have a Neurologist in town for emergencies. I'm  trying Botox on the voice box to see if that help my speech. Fingers crossed"
1 hour ago
rose left a comment for noniefitz
"Dear Noniefitz, Inoticed on your profile that you live in Michigan (Mt Pleasant is only a couple hours from my home) and see someone at U of M. I also live in Michigan (Pinckney) and see Dr, Shakkottai, a neuro at U of M. I'm 60 years young and…"
2 hours ago

Top Discussions 

1 Dizziness


Posted by Marjorie Friesen on September 13, 2014



Posted by Patsy on September 18, 2014

3 want to buy a rollator

want to buy a rollator

Posted by profvasant on September 19, 2014

4 nursing home

nursing home

Posted by john caruso on September 15, 2014

5 acid


Posted by missy stowe on September 17, 2014

6 Charlie horse/leg cramps

Charlie horse/leg cramps

Posted by Iwentdownunder on September 12, 2014

7 genetic testing

genetic testing

Posted by maria on September 16, 2014

8 International Ataxia Awareness Day

International Ataxia Awareness Day

Posted by granny h on September 15, 2014



Posted by Anthony Perkins on September 20, 2014



Posted by silentbob on September 16, 2014


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Blog Posts

2nd input by Elle-iloca

Posted by Elle on September 20, 2014 at 12:00pm 0 Comments

Must have struck some chords out there: idiopathic cerebellar ataxia’, my 1st time input on this site, got as much as 141 views in two days time and 165 as we speak. So lacing some ABC together again. This time to BOOST your serotonin…



Posted by Norbert N Steiner on September 19, 2014 at 2:29pm 5 Comments


I am not diagnosed yet, but just had a brain MRI without contrast, and there are several things that I need to have explained.  The doctor who ordered it is an ataxia specialist and I have a really hard time as he or his…

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