Living With Ataxia - Online Support Group

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If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

where are directions for filing a reply

Started by Silkybill in General. Last reply by John "JC" Colyer 47 minutes ago. 1 Reply

No Description

Bursitis

Started by brittie in General. Last reply by barb1228 4 hours ago. 8 Replies

Has anyone had bursitis?In 2012, I used to walk 6 miles a week but in 2013 I couldn't walk because of hip pain.The orthopedist told me that I had hip bursitis because of ataxia and it will never go away.Have any of you experienced it? Is there a new…Continue

Tags: exercise, bursitis

dementia?

Started by runner in General. Last reply by Debora Warner 9 hours ago. 11 Replies

I know that some ataxias have dementia as an associated symptom and am wondering if anyone has been told by their doctor that they have dementia or if it's a common symptom with your specific type of ataxia?Continue

Tags: memory, dementia

24 ,ataxia newbie

Started by brittie in General. Last reply by Ozzy on Saturday. 17 Replies

Hello,I'm BrittanyI am 24 and found out when I was 20 that I had cerebellum atrophy caused by the cancer. I had cancer when I was 14.About 2 years ago, I started choking while drinking, I have since learned to drink with a straw. No one could figure…Continue

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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.

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Latest Activity

John "JC" Colyer replied to Silkybill's discussion where are directions for filing a reply
"Write in box ▼ Reply to This , & click add reply"
47 minutes ago
John "JC" Colyer left a comment for Luther Teddy Joshua
"Welcome Luther, you will connect with good people here that will give you support and information , stay strong!"
49 minutes ago
John "JC" Colyer left a comment for darjoy
"Welcome , you will connect with good people here that will give you support and information , stay strong!"
50 minutes ago
Profile Icondarjoy and Luther Teddy Joshua joined Living With Ataxia - Online Support Group
51 minutes ago
barb1228 replied to brittie's discussion Bursitis
"Hi Brittie,   I too was diagnosed with bursitis of the hip along with a bad back and it went away.  I think I just walked and the hip bursitis went away and the back pain went away with a good therapist. Your doctor is wrong.  My…"
4 hours ago
oblidioblida replied to Chris's discussion Am I eligible for SSDI?
"I've had a similar experience to others, I was approved right away based on my doctors diagnosis. In my case, I first had State Disability insurance, and then after six months, my companies private disability insurance kicked in. Also based on…"
7 hours ago
runner is now friends with confused and brittie
9 hours ago
Debora Warner replied to runner's discussion dementia?
"Not being able to multi task forces us to be in the present moment. This is a blessing!"
9 hours ago

Top Discussions 

1 Huge tax breaks in the works for people with disabilities!

Huge tax breaks in the works for people with disabilities!

Posted by gypsy2091 on December 17, 2014

2 hi everyone

hi everyone

Posted by stacey on December 13, 2014

3 24 ,ataxia newbie

24 ,ataxia newbie

Posted by brittie on December 18, 2014

4 Is STEMCELL the only hope for ATAXIA?

Is STEMCELL the only hope for ATAXIA?

Posted by Sam on November 14, 2014

5 Seeking Southern Oregon Ataxia Support Group

Seeking Southern Oregon Ataxia Support Group

Posted by MissCake2 on December 3, 2014

6 ABLE Act

ABLE Act

Posted by gypsy2091 on December 14, 2014

7 Ataxia research info. via REACT community

Ataxia research info. via REACT community

Posted by Alan Thomas on December 17, 2014

8 Life With Ataxia

Life With Ataxia

Posted by Jonas Cepkauskas on December 17, 2014

9 Anticipation

Anticipation

Posted by breddersboy on December 17, 2014

10 Information via Rare Disease UK

Information via Rare Disease UK

Posted by Alan Thomas on December 16, 2014

 
 
 

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Blog Posts

love this group

Posted by brittie on December 19, 2014 at 8:34pm 1 Comment

I am in love with this group.

All the long term symptoms since the cancer are starting to click.

The doctors said that they could get worse up 35 years post chemo but never told me what would happen.

I am 9 years post chemo.…

Continue

Life With Ataxia

Posted by Jonas Cepkauskas on December 17, 2014 at 9:59pm 0 Comments

Understandable knowledge that you should have....

http://fightataxia.org/Books.html

Events

    International Ataxia Awareness Day is September 25 

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