"To Know the Joy of Giving"
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for Wales RareDisease Day reception 2014
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The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
his website is http://www.walkingwithataxia.com/I have heard from Dr. Clouse:“I'm anticipating being there in the St. Charles/Wheaton area on or about Aug. 21 for one month.”Dr. Clouse is planning on…Continue
Yesterday, I took delivery of this simple gadget, designed to enable even the most wobbly of us to carry drinks safely. I have to say it's brilliant. I can safely carry a hot cup of tea around the house, without even thinking about it. Not bad at…Continue
I've had double vision for about 15yrs.Over time the pupil in my left eye eased it's way closer to my nose,eventually being classified as a squint.This week I had surgery to correct it and no longer have doublevision.The surgeon put adjustable…Continue
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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.
Ben’s Friends is elated to have such a strong partner in its campaign to provide support to every rare disease patient in the UK.
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Posted by Cynders on April 15, 2014
"Thanks so much! I have also sent info to my friend, so he will hopefully join himself as well…"