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for Wales RareDisease Day reception 2014
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The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
Hi allI am 43 and have had Cerebellar Ataxia (SCA 2) for 30 years. I have been diagnosed with depression (which totally sucks!!!). I can handel the physical side, but not the psychological side. Is my Ataxia causing this and does anyone else…Continue
Well that was me 50 on the 18th [a minute ago I was 20]. My pal Stuart[ for 40 years] and his wife visited from oz and Stuart gave me a card that made me feel very humble indeed. I wont tell you what he wrote coz that's for me, but sometimes you are…Continue
Hi all. Been a bit quiet for a while hope everyone is o.k.I have a question. I have SCA6 and recently I have been experiencing odd things that are quite frankly scaring me.You know when you're really tired and start to nod off and you feel like…Continue
I am just wondering what some of you are doing about , phantom pains like the ones that feel like bee stings . I am getting them almost daily now , mostly lower legs and feet , but other areas as well . They come and go in waves , will be intense…Continue
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