If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.
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"To Know the Joy of Giving"
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for Wales RareDisease Day reception 2014
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The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
Hello Everyone,A lot of members in my family have been diagnosed with this terrible disease.I'm still too afraid to get tested. I'm 33 years old, and have been experiencing some symptoms lately.My symptoms are muscle twitches, eyelid, legs, neck,…Continue
Hi everyone! I need help, here is my story.two years ago I began noticing my leg would bounce if on the ball of my foot, then my fingers would spasm randomly, and I would drop things easily. I then had the flu and a few weeks later my legs spasmed…Continue
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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.
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