Living with Ataxia

We're here for your support.

LivingWithAtaxia.org is an online support group for those living with hereditary or non-hereditary ataxia.

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Events

In The News

1/23/10: LivingWithAtaxia Featured on SavantMD.com
8/31/09: LivingWithAtaxia Mentioned on About.com
8/12/09: OrganizedWisdom.com's Favorite Ataxia Community OrganizedWisdom.com.

Members

  • Darran Winfield-Stanesby
  • melonie
  • Colleen Yosick
  • Kati
  • caroline repton
  • Kristi Sturwold
  • Chanell Warthen
  • Chris Faught
  • Mary Donahue
  • William Phillips
  • Ben Munoz
  • Scott Orn
  • Eduardo Lima
  • Shane Bratby
  • Alison
  • Carol Gow

Your Community Managers

Kati
Alan Thomas
Ben Munoz
Scott Orn

Ride Ataxia

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Row the Atlantic (AUK)

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DONT STOP ME NOW

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This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.

Patient Communities
* Aicardi Syndrome
* Adrenoleukodystrophy (ALD)
* Arteriovenous Malformation (AVM)
* Ataxia (International)
* Ataxia (U.S.A.)
* Brain Aneurysms
* Chiari Malformation
* Crohn's Disease
* Fibromyalgia
* Trigeminal Neuralgia (TN)
 

Latest Activity

Colleen Yosick left a comment for melonie
7 hours ago
Colleen Yosick and melonie are now friends
7 hours ago
Kati commented on Arif Ansari's blog post 'Financial Stability'
I can't manage to work anymore, the money we get isn't enough to pay a full time PA and the equipment you need as well when you got batteries to replace etc especially when disability stores charge so much for equipment.
8 hours ago
jose luis left a comment for Kristi Sturwold
13 hours ago
Alan Thomas commented on Alan Thomas's event '****** Row The Atlantic ****** for Ataxia UK'
less than 150 nmiles http://blog.mailasail.com/redarrow/88
13 hours ago
Alan Thomas left a comment for Darran Winfield-Stanesby
13 hours ago
Darran Winfield-Stanesby Oh no one of my old power lifting buddies is coming over to train with me tomorrow!PAIN!!!!
14 hours ago
Alan Thomas left a comment for Chanell Warthen
16 hours ago
William Phillips replied to Kati's discussion 'Ablequip Wheel-link'
Never had Physics at my school Carol. Or maybe I was day-dreaming when they did. I did and still do, 'do' a lot of that. xx
yesterday
Kati and Chanell Warthen are now friends
yesterday
Scott Orn and Deborah Gray are now friends
on Saturday
Ben Munoz left a comment for Chanell Warthen
on Saturday

Blog Posts

Arif Ansari

Financial Stability

Posted by Arif Ansari on March 4, 2010 at 12:10pm — 4 Comments

Ben Munoz

Ataxia Spinocerebellar and Ataxia Telangiectasia Qualify Immediately for U.S. Social Security Disability Benefits

Posted by Ben Munoz on February 20, 2010 at 2:00pm

Alan Thomas

Penwest Announces Initiation of Phase IIa Clinical Trial of A0001 in Patients With Friedreich's Ataxia

Posted by Alan Thomas on February 18, 2010 at 2:10pm

Forum

Kati

Ablequip Wheel-link 6 Replies

Started by Kati. Last reply by William Phillips 1 day ago.

Alan Thomas

Oscar winning film musicbyprudence 1 Reply

Started by Alan Thomas. Last reply by Kati Mar 12.

Alan Thomas

BBC Ouch Newsletter

Started by Alan Thomas Mar 11.

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A Website raising funds for Ataxia uk while raising awareness, of Ataxia
theincrediblewebsite

Richard and Tom are raising money for Ataxia (Ataxia UK) which a close friend of ours, James Downie, unfortunately suffers from.
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