Living With Ataxia - Online Support Group

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If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.

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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

Bloody Neurology

Started by Beverley in General. Last reply by Beverley 3 hours ago. 15 Replies

 Hi all, hope everyone is well.By the title of my discussion those of you that know me can guess that I am very, very, very p****d off and in need of a rant.O.K. Diagnosed with SCA6 by genetic testing and all the other stuff a couple of years ago…Continue

last neuro appointment

Started by maria in General. Last reply by Norbert N Steiner 15 hours ago. 3 Replies

Hi all , i said id let u all know how my appointment went. The genetic tests came back negative, in that they could not find the gene responsible for my episodic ataxia. The neurologist said that based on my symptoms which are.. Nystagmus, vertigo,…Continue

Motion Therapeutics Vest

Started by euniecorn in Recommend a Doctor, Therapist, or Clinic (Positive Review Only) yesterday. 0 Replies

I found out about this motion therapeutics vest about a year ago. I saw the videos of patients who had MS, and other movement diseases including ataxia. They showed quite an improvement from just simply wearing a weighted vest. I was skeptical but…Continue

~Anxiety~

Started by Jeannie Ball in General. Last reply by Glitter on Butterflies yesterday. 3 Replies

Do-Anywhere Anxiety BustersBy Eric Metcalf | Medically reviewed by Christine Wilmsen Craig, MDTry…Continue

Tags: Anxiety

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Latest Activity


Moderator
Beryl Park commented on rayjan's blog post ITS BEEN A WHILE
"Hi Jan:-) Congratulations on your upcoming 25th :-) Have a great time at Disneyworld :-) xB"
2 hours ago
rayjan's blog post was featured

ITS BEEN A WHILE

HI FRIENDS   HOW YA DOING? ME AND RAY R FINE,JUST LIVNG ONE DAY AT A TIME WITH MY ATAXIA AND HIS UNCONDITIONAL LOVE AND SUPPORT.BUT OUR GOOD NEWS IS WE R CELERATING OUR 25TH BY GOING TO DISNEYWORD IN NOV.  ACTUALLY I THOUGHT I WAS DONE WITH TRAVL…See More
2 hours ago
Beverley replied to Beverley's discussion Bloody Neurology
"Thanks for your support and for listening and thanks John re the lashings lol. It's quite ironic actually as just as I'd finished typing my rant, my G.P called me and asked me to pop in after work. Goes to the G.P and apparently I have…"
3 hours ago
Marjorie Friesen replied to Beverley's discussion Bloody Neurology
"Lol U Go Girl!  I really feel it is time we find a Doctor who can open a book and see what we need.  We keep supporting Neuroglist who don't know anything about this except what you said."
13 hours ago
euniecorn replied to Beverley's discussion Bloody Neurology
"I hear you. That is why I stopped going. There's no cure for ataxia and i really believe pharmeceutical companies are out there to just make money off drugs for certain pains but have side effects. Its a load of crap. The only person that can…"
13 hours ago
Norbert N Steiner replied to maria's discussion last neuro appointment
"Hi Maria, I am in a similar boat!  My ataxia specialist says that my history and previous tests are consistent with EA1, but to diagnose me he needs to see me during an attack.  He asked my wife to record me walking while I have an…"
15 hours ago
Zoey replied to Beverley's discussion Bloody Neurology
"Now here is a fabulous person making the best of life! God bless you!"
16 hours ago
Davo liked Beverley's discussion Bloody Neurology
16 hours ago

Top Discussions 

1 PS

PS

Posted by Lassie-Elena !!! Mary-Elena on September 24, 2014

2 Bloody Neurology

Bloody Neurology

Posted by Beverley on September 30, 2014

3 CAN A FALL TRIGGER AN EARLY ONSET OF ATAXIA?

CAN A FALL TRIGGER AN EARLY ONSET OF ATAXIA?

Posted by COREY CHANG on September 27, 2014

4 Things are getting worse

Things are getting worse

Posted by Searcher on September 27, 2014

5 #IAAD post Putting your Heart into Twitter with Alan Thomas at Doctors 2.0 & You 2014 #doctors20

#IAAD post Putting your Heart into Twitter with Alan Thomas at Doctors 2.0 & You 2014 #doctors20

Posted by Alan Thomas on September 26, 2014

6 WALKING

WALKING

Posted by Fran the man on September 23, 2014

7 Brain Based Therapy

Brain Based Therapy

Posted by Marjorie Friesen on September 28, 2014

8 ~Anxiety~

~Anxiety~

Posted by Jeannie Ball on September 29, 2014

9 last neuro appointment

last neuro appointment

Posted by maria on September 30, 2014

10 My Results

My Results

Posted by Adam on September 23, 2014

 
 
 

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Blog Posts

ITS BEEN A WHILE

Posted by rayjan on September 30, 2014 at 9:19am 1 Comment

HI FRIENDS   HOW YA DOING? ME AND RAY R FINE,JUST LIVNG ONE DAY AT A TIME WITH MY ATAXIA AND HIS UNCONDITIONAL LOVE AND SUPPORT.BUT OUR GOOD NEWS IS WE R CELERATING OUR 25TH BY GOING TO DISNEYWORD IN NOV.  ACTUALLY I THOUGHT I WAS DONE WITH TRAVL…

Continue

Ben's Friends Monthly Newsletter - September 2014 Issue

Posted by Ben Munoz on September 24, 2014 at 9:32am 0 Comments

Just the Stats:

Communities: 38

Friends: 42,500+




In this issue…

Continue

 International Ataxia Awareness Day is September 25 

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First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

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