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If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.

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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

I'm desperate

Started by Julie Perks in General. Last reply by Julie Perks 1 hour ago. 1 Reply

Hi it's my partner who has the ataxia, he's had it for about 2.5 years, he is now getting a lot more pain in legs, knees, back, shoulders, everywhere really, he keeps saying tts the knocks he used to take years ago playing American football and…Continue

Ataxia symptoms but clean MRI

Started by essentialoilgirl in General. Last reply by pgillenw 6 hours ago. 4 Replies

Hello dear group,Does anyone have recurrent ataxic episodes but clean brain and spine MRI's?Both of my attacks have happened 2-10 weeks post flu. The first attack (2 years ago)lasted 9 months, this attack (4 months ago)has been more disabling, can't…Continue

Support of Friends and Loved Ones

Started by Leowyn in General. Last reply by pgillenw 18 minutes ago. 6 Replies

I feel like there is definitely a learning curve and necessity for a certain level of observational skills to be fully supportive of someone with ataxia. I know my boyfriend gets frustrated with his friends and family a lot, and even me sometimes,…Continue

neck and torso incoordination

Started by Dee in General. Last reply by Chris yesterday. 14 Replies

I'm wondering if anyone else has this problem and what you do about it. I can walk for a bit in my house unaided. On short trips out i use a roller. At the mall or longer trips like the grocery store i use a wheelchair or scooter. I find as i get…Continue

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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.

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Latest Activity

pgillenw replied to Leowyn's discussion Support of Friends and Loved Ones
"I am most grateful for all the little and big things my partner does for me. To me its normal for my partner to do things that a person who does not have Ataxia would do without a conscious thought. I want my partner to enjoy life, do things without…"
18 minutes ago
Julie Perks replied to Julie Perks's discussion I'm desperate
"Sorry that should say SCA not ACA. X"
1 hour ago
Julie Perks posted a discussion

I'm desperate

Hi it's my partner who has the ataxia, he's had it for about 2.5 years, he is now getting a lot more pain in legs, knees, back, shoulders, everywhere really, he keeps saying tts the knocks he used to take years ago playing American football and…See More
2 hours ago
Julie Perks left a comment for Alan Thomas
"Hi Alan thanks for the friend request sorry for the delay in getting back to you. Hope everything is going ok with you."
2 hours ago
Julie Perks and Alan Thomas are now friends
2 hours ago
Mommaroo replied to Linda's discussion Falling over.
"I have been to neurolists in three different states. I've had 8 MRI's, a spinal tap, holter monitor, an EEG, been to a neuro opthalmologist, Neuro audiolost....you name it, I've had it. I've been diagnosed with "…"
3 hours ago
pgillenw replied to essentialoilgirl's discussion Ataxia symptoms but clean MRI
"Unfortunately in my case the MRI and contrast CAT showed damage to the Cerebellum. Also had a spinal that indicated another clue that my immune system could be the culprit, I have a history of SLE. I do know that any thing like pharma drugs, alcohol…"
6 hours ago
Rae left a comment for Lone Nielsen
"Hi! I admire your spunk! I was not diagnosed until 2003 and then it was only after seeing all kinds of doctors and referrals. I was uncoordinated when I was younger and had young kids at home. I was the family klutz and my kids thought it was…"
6 hours ago

Top Discussions 

1 Falling over.

Falling over.

Posted by Linda on April 14, 2015

2 Support of Friends and Loved Ones

Support of Friends and Loved Ones

Posted by Leowyn on April 16, 2015

3 neck and torso incoordination

neck and torso incoordination

Posted by Dee on April 14, 2015

4 Ataxia symptoms but clean MRI

Ataxia symptoms but clean MRI

Posted by essentialoilgirl on April 17, 2015

5 When To tell the person you are dating

When To tell the person you are dating

Posted by Iwentdownunder on October 7, 2014

6 Ladies, I need some advice

Ladies, I need some advice

Posted by butterflyflyaway on April 9, 2015

7 Weekend Holiday?

Weekend Holiday?

Posted by Leowyn on April 13, 2015

8 Vision

Vision

Posted by Carlous Bobo on April 5, 2015

9 Cerebellar ataxia

Cerebellar ataxia

Posted by Carlous Bobo on April 14, 2015

10 Exoskeleton suit

Exoskeleton suit

Posted by Baaartman on April 9, 2015

 
 
 

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Blog Posts

ataxians in Spanish speaking countries

Posted by imlatina on April 1, 2015 at 3:50pm 2 Comments

Any 'ataxians' from South America or from the Caribbean?

NEW

Posted by imlatina on March 30, 2015 at 3:58pm 3 Comments

i'm new here.  does anybody know how fast ataxia symtoms increase?  i was just diagnosed last month. thanks.

Events

April 2015
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    International Ataxia Awareness Day is September 25 

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