Living With Ataxia - Online Support Group

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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

Dr. Clouse

Started by Cynders in General. Last reply by Bob in st louis yesterday. 1 Reply

his website is http://www.walkingwithataxia.com/I have heard from Dr. Clouse:“I'm anticipating being there in the St. Charles/Wheaton area on or about Aug. 21 for one month.”Dr. Clouse is planning on…Continue

balance vest

Started by Steve in General. Last reply by Steve 2 hours ago. 14 Replies

Hi Everyone,I am interested in a balance vest. Can someone who has one tell me if they really work? Here is the vest I am looking at.…Continue

Solution found to problem of carrying drinks without spilling

Started by Danielle Cannon in General. Last reply by rose on Sunday. 7 Replies

Yesterday, I took delivery of this simple gadget, designed to enable even the most wobbly of us to carry drinks safely. I have to say it's brilliant. I can safely carry a hot cup of tea around the house, without even thinking about it. Not bad at…Continue

Tags: wobbly, ataxia, drinks, spilling

Double vision and squint surgery

Started by Beryl Park in General. Last reply by Bob in st louis yesterday. 17 Replies

I've had double vision for about 15yrs.Over time the pupil in my left eye eased it's way closer to my nose,eventually being classified as a squint.This week I had surgery to correct it and no longer have doublevision.The surgeon put adjustable…Continue

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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.

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Latest Activity

Steve replied to Steve's discussion balance vest
"Hi Everyone, I found a article that a weighted vest improves balance in 80% of patients. Finally us ataxians have some hope. http://www.kentucky.com/2014/02/24/3106778/weighted-vest-helps-patients-improved.html"
2 hours ago
John "JC" Colyer liked Cynders's discussion Dr. Clouse
12 hours ago

Moderator
Beryl Park left a comment for gina
"Hi Tina:-) welcome to the group, If you are still waiting for a diagnosis, you must be feeling confused and disorientated at the moment. There's lots of information about Ataxia on the site and you can always get advice and emotional support,…"
13 hours ago
John "JC" Colyer left a comment for gina
""Welcome Gina,  you will connect with good people here that will give you support and  information , stay strong!"
15 hours ago

Moderator
dancermom left a comment for gina
"Welcome, gina!"
16 hours ago
Profile Icongina and Bert joined Living With Ataxia - Online Support Group
17 hours ago
Beverley posted a status
"Hi all. Having a wobbly few days. Don't know why. Fingers crossed as no falls. YET !!!!"
17 hours ago
Beverley posted photos
17 hours ago

Top Discussions 

1 Double vision and squint surgery

Double vision and squint surgery

Posted by Beryl Park on April 11, 2014

2 Having a rough time

Having a rough time

Posted by Firefox on April 10, 2014

3 balance vest

balance vest

Posted by Steve on April 12, 2014

4 Solution found to problem of carrying drinks without spilling

Solution found to problem of carrying drinks without spilling

Posted by Danielle Cannon on April 12, 2014

5 Frenkel exercises:   "The brain as a whole learns to compensate for motor deficits in the cerebellum"

Frenkel exercises: "The brain as a whole learns to compensate for motor deficits in the cerebellum"

Posted by maryseas on April 6, 2014

6 Dr. Clouse

Dr. Clouse

Posted by Cynders on April 15, 2014

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Living With Ataxia - Online Support Group

New member:

"Thanks so much!  I have also sent info to my friend, so he will hopefully join himself as well…"

Living With Ataxia - Online Support Group 

"I haven’t been on here long but I’m already starting to see that it’s great:)..."

“I haven’t been on here long but I’m already starting to see that it’s great:) Thanks for the welcome!”

- a member from Living With Ataxia - Online Support Group

"Thank you!"

“Thank you!”

- a member from Living With Ataxia - Online Support Group
 
 
 

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Blog Posts

In.response. .

Posted by Still dancing on April 15, 2014 at 3:32am 0 Comments

I live in Washington state, USA. Dr. Borisenko would be glad of new patients.

Never give up.

Posted by Armando Abrero on April 11, 2014 at 5:44pm 7 Comments

Just wanted to share this inspiring video.

Laugh often. Love a lot. Be strong. Never give up.…

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