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for Wales RareDisease Day reception 2014
**** Able Radio **** http://www.ableradio.com/
International Ataxia Awareness Day is September 25
CNN I - Report @ http://ireport.cnn.com/docs/DOC-1037130
The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
Findacure founder will be speaking at the world Orphandrug congress in November via @orphandruganauAs the 5th …Continue
For the past 6/7 years I have thought I had CA which was officially diagnosed.However I am baffled by some of the symptoms.There is no-one in my support group who has the same.6 or so years ago everything was ok.I go to the Oxford Clinic and the…Continue
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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.
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