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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

Soymilk

Started by SCA_in_Tx in General. Last reply by Sarah-Jane Squire 22 hours ago. 2 Replies

Soymilk seems to help me, has anyone else tried it ? (there is a disclaimer that says " In some individuals carrageenan may cause intestinal discomfort or worse")  ((Carrageenan is an additive made from seaweed. it is used as a thickener in products…Continue

Medical Discharge from the Air Force

Started by Titantilton in General. Last reply by gelu65 11 hours ago. 4 Replies

Hello everyone,     Let me start by saying thanks for reading into my questions. So about my question. I was diagnosed last month with SCA3 in the Air Force, and now they've sent up a package to see if the USAF wants to discharge me for several…Continue

Tags: CAG, repeats, problems, Back, Force

Children with Ataxia

Started by Beryl Park in General on Monday. 0 Replies

There have been many posts on here from parents desperate to know how other families have coped when their child has been diagnosed with Ataxia.A new booklet 'Children with Ataxia' has been published by the National Ataxia Foundation. This has been…Continue

Over hydration

Started by Joy in General. Last reply by Kay on Monday. 3 Replies

Hope this may help someone else. My husband's balance and unsteadiness has been getting much worse. We heard a news piece about the dangers of over hydration on the brain. Since he drinks a LOT of water, we looked into it and have cut back on his…Continue

Treasure The Exceptions pt. 8 – Rare Toolkits (Via Findacure

Started by Alan Thomas in General on Friday. 0 Replies

Treasure The Exceptions pt. 8 – Rare ToolkitsThis is our eighth instalment from our guest blogger, who writes about various aspects of living with rare conditions. All posts under the title ‘Treasure the Exceptions’ are written by our guest blogger,…Continue

Tags: , Rare, Toolkits, 8, pt.

Info. Share China announces stem-cell rules

Started by Alan Thomas in General on Friday. 0 Replies

Long-awaited regulations may curb rogue clinics offering unproven treatments.Chinese stem-cell scientists have welcomed long-awaited measures that, state media claim, will rein in rogue use of stem cells in clinics while allowing research.The…Continue

Tags: rules, stem-cell, announces, China

AAVLife is a gene therapy company focused on treating significant unmet medical need. (FA)

Started by Alan Thomas in General on Friday. 0 Replies

AAVLife is a gene therapy company focused on treating significant unmet medical need.AAVLife's lead indication is for Friedreich’s Ataxia Cardiomyopathy. Our program is based on the successful…Continue

Tags: significant, treating, unmet, medical, need.

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Ben's Friends Partners with Rare Disease UK

Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.

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Latest Activity

gelu65 replied to Titantilton's discussion Medical Discharge from the Air Force
"   Can you use your physical that you went thru when joining show that you had no problems then. You are not old enough to make a big change so fast maybe."
11 hours ago
Titantilton replied to Titantilton's discussion Medical Discharge from the Air Force
"downside to those is I'm stationed outside the U.S. I'm in Japan so all sources available to me are DoD or otherwise closely affiliated. I could talk to base legal maybe, but I'm not sure how far they would get me."
11 hours ago
gelu65 replied to Titantilton's discussion Medical Discharge from the Air Force
"    Is there a possibility of a second opinion, I would get one even if I had to pay for it myself."
13 hours ago
Stephen commented on Max's blog post Coping
"'There is always someone worse off' is that like schadenfreude. I don't understand why people have this thought process. It's like saying blue is blue. Yes ataxia shows but you can (sort of) conceal it and people may assume…"
13 hours ago
Sarah-Jane Squire replied to Titantilton's discussion Medical Discharge from the Air Force
"hi this is really a bummer for you. Are there any lawyers dealing purely with disabled folk in the US?  We have them here.  It's worth looking into. Re your scoliosis, I have it as do several of my ataxian friends.  It seems that…"
22 hours ago
adamgriffies and anna a.f. are now friends
22 hours ago
Sarah-Jane Squire replied to SCA_in_Tx's discussion Soymilk
"hi there Yes, I  drink soya milk whenever I remember!  love and light S-J"
22 hours ago
Patsy replied to SCA_in_Tx's discussion Soymilk
"I read that soya milk or any soya is god  for balancing hormone levels so I have always included a glass of soya milk in my diet.  I havent been aware of any intestinal problem I could attribute to soya although constipation has always…"
22 hours ago

Top Discussions 

1 Over hydration

Over hydration

Posted by Joy on August 30, 2015

2 Soymilk

Soymilk

Posted by SCA_in_Tx on September 1, 2015

3 Medical Discharge from the Air Force

Medical Discharge from the Air Force

Posted by Titantilton on September 1, 2015

4 is pregnancy something i should consider?

is pregnancy something i should consider?

Posted by clumsyiam on May 16, 2015

5 working with ataxia

working with ataxia

Posted by refinisher on August 25, 2015

6 wanting to know progress with ataxia

wanting to know progress with ataxia

Posted by refinisher on August 25, 2015

 
 
 

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September 2015
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    International Ataxia Awareness Day is September 25 

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