Have you face discrimination after diagnosed with ataxia?

Started by Charmaine in General 1 hour ago. 0 Replies 0 Likes

This is a question deep down in my heart.Unfortunately I got such kind of "friends".When I was suspected with ataxia, I was shocked and almost collapsed.  During the time of waiting  genetic test result, I called my friends and shared my feelings,…Continue

Have you had genetic testing for ataxia done?

Started by MissCake2 in General. Last reply by Charmaine 1 hour ago. 50 Replies 1 Like

I'm just curious about those of you who have had the genetic testing for ataxia done... What made your doctor decide to do a genetic test?  Is it expensive?  Did insurance cover it?  I have been diagnosed with Gluten Ataxia, but it still doesn't add…Continue

It Helps to Hear Peoples Advice

Started by Lori in General. Last reply by Kati 1 hour ago. 7 Replies 1 Like

I am 51 with Ataxia that is getting worse with age. It helps so much to hear other people's stories. I Thank all of you for sharing. I was starting to crawl in a hole till I found this sight. I try so hard to keep my head up!Continue

Requesting information

Started by fc in General. Last reply by Jeannie Ball 15 hours ago. 12 Replies 1 Like

I was diagnosed with ATAXIA (SCA) in January.  I am facing many limitations, like miobility and loss of balance, falling down and hitting my head.  Furthertmore,  I am looking for  a job and when they see my disability, they just saY:  "You hear…Continue

Tags: work, employment, information, Requesting