Living with Ataxia

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LivingWithAtaxia.org is an online support group for those living with hereditary or non-hereditary ataxia.

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Events

In The News

1/23/10: LivingWithAtaxia Featured on SavantMD.com
8/31/09: LivingWithAtaxia Mentioned on About.com
8/12/09: OrganizedWisdom.com's Favorite Ataxia Community OrganizedWisdom.com.

Members

  • Alison
  • Alan Thomas
  • Bones
  • Ben Munoz
  • Kati
  • Shane Bratby
  • Anthony Casey
  • Carol Gow
  • Colleen Yosick
  • melissa krom
  • William Phillips
  • Dave Doroskewicz
  • Patsy
  • ceri
  • Marie Turner
  • Lit Smith

Your Community Managers

Kati
Alan Thomas
Ben Munoz
Scott Orn

Ride Ataxia

NorCal Jersey

Radio Blog

Row the Atlantic (AUK)

Nothing at all

Day 65 - Still 275 miles to go!!!

DONT STOP ME NOW

Candle, Candle, Multi ended Candle

Fuzzy, Head and Blind Chatterbox

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This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.

Patient Communities
* Aicardi Syndrome
* Adrenoleukodystrophy (ALD)
* Arteriovenous Malformation (AVM)
* Ataxia (International)
* Ataxia (U.S.A.)
* Brain Aneurysms
* Chiari Malformation
* Crohn's Disease
* Fibromyalgia
* Trigeminal Neuralgia (TN)
 

Latest Activity

Alison and Shane Bratby are attending Alan Thomas's event
NAIDEX 2010 Birmingham, UK at NEC , Birmingham, UK
April 20, 2010 at 10am to April 22, 2010 at 4pm
The UK's largest event for homecare, disability and rehabilitation returns for its 36th year! Held at Birmingham's NEC, Naidex is the biggest and best opportunity to test, touch and compare the latest products and services to aid independent living…
54 minutes ago
Alan Thomas added 2 discussions
3 hours ago
Alan Thomas gave a gift to Ben Munoz
Beer Toast

Beer Toast

From the Gift Store
6 hours ago
Alan Thomas added an event
March 12, 2010 to March 21, 2010
http://www.vancouver2010.com/paralympic-games/
6 hours ago
Ben Munoz left a comment for Bones
8 hours ago
Alan Thomas commented on Alan Thomas's event 'The National Ataxia Foundation Chicago, IL – March 12-14, 2010'
Any LWA ers attending ? Photos / reports ?? Alan
9 hours ago
Kati replied to Kati's discussion 'Ablequip Wheel-link'
Well they mentioned he had a patent for it so I'm assuming it would have had to go through safety checks to receive a patent? It was featured in 'Independant Living' magazine. It didn't show him putting it on and taking it off, but I would assume y…
10 hours ago
Alan Thomas commented on Alan Thomas's event 'NAIDEX 2010 Birmingham, UK'
Hello booked the Hilton Birmingham Metropole (they had a special offer on) (Hotels, on site, are pretty expensive) think there is a few Ataxians attending. Alan Ataxia South Wales chairman Ataxia UK Trustee
11 hours ago
Shane Bratby commented on Alan Thomas's event 'NAIDEX 2010 Birmingham, UK'
I will be there mate. what hotel will u be staying at?
11 hours ago
Bones left a comment for Ben Munoz
14 hours ago
Carol Gow replied to Kati's discussion 'Ablequip Wheel-link'
Hello Kati A very ingenious device which has potential. It is sickening when you can't move between aisles because of obstructions. It is always this is always the case at my local shop. The only thing that worries me is the stability of the scooter…
15 hours ago
Ben Munoz left a comment for Anthony Casey
16 hours ago

Blog Posts

Arif Ansari

Financial Stability

Posted by Arif Ansari on March 4, 2010 at 12:10pm — 3 Comments

Ben Munoz

Ataxia Spinocerebellar and Ataxia Telangiectasia Qualify Immediately for U.S. Social Security Disability Benefits

Posted by Ben Munoz on February 20, 2010 at 2:00pm

Alan Thomas

Penwest Announces Initiation of Phase IIa Clinical Trial of A0001 in Patients With Friedreich's Ataxia

Posted by Alan Thomas on February 18, 2010 at 2:10pm

Forum

Alan Thomas

Oscar winning film musicbyprudence

Started by Alan Thomas 3 hours ago.

Alan Thomas

BBC Ouch Newsletter

Started by Alan Thomas 6 hours ago.

Kati

Ablequip Wheel-link 3 Replies

Started by Kati. Last reply by Kati 10 hours ago.

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A Website raising funds for Ataxia uk while raising awareness, of Ataxia
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Richard and Tom are raising money for Ataxia (Ataxia UK) which a close friend of ours, James Downie, unfortunately suffers from.
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