Living With Ataxia - Online Support Group


If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.


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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.


Is my Cerebellar Ataxia causing my depression?

Started by Damo in General. Last reply by Adam 1 hour ago. 10 Replies

Hi allI am 43 and have had Cerebellar Ataxia (SCA 2) for 30 years.  I have been diagnosed with depression (which totally sucks!!!).  I can handel the physical side, but not the psychological side.   Is my Ataxia causing this and does anyone else…Continue

Sometimes life aint bad

Started by Punk in General. Last reply by Punk 4 hours ago. 11 Replies

Well that was me 50 on the 18th [a minute ago I was 20]. My pal Stuart[ for 40 years] and his wife visited from oz and Stuart gave me a card that made me feel very humble indeed. I wont tell you what he wrote coz that's for me, but sometimes you are…Continue

Weird stuff

Started by Beverley in General. Last reply by Beryl Park 11 hours ago. 8 Replies

Hi all. Been a bit quiet for a while hope everyone is o.k.I have a question. I have SCA6 and recently I have been experiencing odd things that are quite frankly scaring me.You know when you're really tired and start to nod off and you feel like…Continue

Krazy Bee Sting Pains

Started by Searcher in General. Last reply by Searcher yesterday. 3 Replies

I am just wondering what some of you are doing about , phantom pains like the ones that feel like bee stings . I am getting them almost daily now , mostly lower legs and feet , but other areas as well . They come and go in waves , will be intense…Continue

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Latest Activity

Jenny shared Damo's discussion on Facebook
58 minutes ago
Adam replied to Damo's discussion Is my Cerebellar Ataxia causing my depression?
"Yes depression can be a symptom of cerebellar ataxia. The cerebellum is responsible for some of our emotions, with a degenerating cerebellum it can cause emotional problems. I have some emotional problems from it, sometimes sad for no reason or just…"
1 hour ago
Theresa replied to Hans's discussion How did it start with you?
1 hour ago
Theresa replied to Hans's discussion How did it start with you?
"Are you still taking ldn and is it helping? "
1 hour ago
branthony replied to Damo's discussion Is my Cerebellar Ataxia causing my depression?
"Yes, I take zoloft. It seems to be pretty normal effect of SCA."
3 hours ago
KimKillone liked Searcher's discussion Krazy Bee Sting Pains
3 hours ago
mas replied to Damo's discussion Is my Cerebellar Ataxia causing my depression?
"i hv sca2, depression & anxiety.  taking citalopram 20mg for them."
3 hours ago
KimKillone liked wobbles's blog post Chronic Pain
3 hours ago

Top Discussions 

1 broken ankle

broken ankle

Posted by Martin Oxley on July 29, 2014

2 Have any studies been done to connect cerebellar ataxia and aspergers?

Have any studies been done to connect cerebellar ataxia and aspergers?

Posted by Nosy on July 25, 2014

3 Weird stuff

Weird stuff

Posted by Beverley on July 30, 2014

4 Is my Cerebellar Ataxia causing my depression?

Is my Cerebellar Ataxia causing my depression?

Posted by Damo on August 1, 2014

5 Sometimes life aint bad

Sometimes life aint bad

Posted by Punk on July 31, 2014



Posted by Patsy on July 25, 2014

7 Unraveling...


Posted by MissCake2 on July 21, 2014

8 Krazy Bee Sting Pains

Krazy Bee Sting Pains

Posted by Searcher on July 29, 2014

9 Hope


Posted by Mish on July 26, 2014

10 Third Findacure Patient Group Workshop – 24th July

Third Findacure Patient Group Workshop – 24th July

Posted by Alan Thomas on July 28, 2014

Ride Ataxia

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DONT STOP ME NOW (Alan's blog)

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My LIfe with Ataxia (Kati's Blog)

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Ben's Friends Monthly Newsletter - July 2014 Issue

Posted by Ben Munoz on July 31, 2014 at 11:05am 0 Comments

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Welcome New Members and Greetings from Ben's Friends!


"You're a firework," as the song goes. We…

Living with Machado Josephs Disease

Posted by eleets39 on July 30, 2014 at 1:04pm 4 Comments

The one thing I found that helps with mood is trying to understand your limits, which I have a hard time with. And a medication called Sertraline which seem to help me out, but truly the only thing that helps is trying to stay positive and being…


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