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The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
Cycling for FA Research and Awareness From the USA to IrelandOne of the main symptoms of Friedreich's ataxia (FA) is loss of proprioception or knowing where your arms and legs are in space without looking at them. This causes loss of balance and…Continue
I am curious if anyone has tried Botox for Ataxia. Did it help, where you able to recover control of your affected limb? Did you experience any negative affects?Continue
I fad CA for 6 years now and I cannot get rid of the leg and knee stiffness. It never give me relief no matter how much movement and exercise I do. Is anyone having this issue and if so what are you doing to help.
I put something similar on Ataxians in Canada.Although diagnosed as Idiopathic SCA I've been told I have links with the recently discovered gene SYNE-1. This is said to be French Canadian in origin.My grandmother corresponded with 'possible…Continue
For those of us with non-genetic forms of ataxia, has it ever been passed onto a family member, like a spouse? While all health care people tell me that Ataxia is not known to be contagious, I can't help feeling that I caught it from an…Continue
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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.
Ben’s Friends is elated to have such a strong partner in its campaign to provide support to every rare disease patient in the UK.
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