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for Wales RareDisease Day reception 2014
**** Able Radio **** http://www.ableradio.com/
International Ataxia Awareness Day is September 25
CNN I - Report @ http://ireport.cnn.com/docs/DOC-1037130
The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
To all Chicago and Great Lakes area people, Fight Ataxia Day is Oct. 4th. Please come out, meet other ataxians, support the cause, and have a great time!!!http://fightataxia.org/Fight_Day.htmlContinue
I had a trivial fall last night while walking to the dining table, and ended up with 3 fractures on my left metatarsals. I want to start using a rollator at home for safer navigation. Any recommendations of model and make from other users would be…Continue
Taith Fawr y Dyn Bach Tina Evans who works at Disability Wales http://www.s4c.co.uk/clic/e_level2.shtml?programme_id=519675220Shown on TV this weekContinue
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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.
Ben’s Friends is elated to have such a strong partner in its campaign to provide support to every rare disease patient in the UK.
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