Living With Ataxia - Online Support Group


If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.


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International Ataxia Awareness Day is September 25th

   International Ataxia Awareness Day is September 25 

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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.


Four additional screening tests to be offered to newborns in Wales

Started by Alan Thomas in General 4 hours ago. 0 Replies

Four additional screening tests will be offered to newborn babies in Wales from early 2015. From early next year, “heel prick” blood samples taken from newborn babies will be tested for four additional metabolic disorders; glutaric aciduria type 1,…Continue

Tags: offered, newborns, in, Wales, be

Ayurveda & Punchakarma

Started by Sp in General. Last reply by Lute 3 hours ago. 6 Replies

Hi all,I am considering traveling to India for Ayurvedic treatment. I had SCA since 90s and was first diagnosed in 1997.Please let me know your thoughts and feedback. Any recommendations?Thanks.Continue


Started by NM-Myra in General. Last reply by Silkybill 40 minutes ago. 25 Replies

I know that we're all affected differently but has anyone out there found something that helps with these balance issues?Continue

Chemotherapy/radiotherapy and SCA

Started by Beryl Park in General. Last reply by Beryl Park 12 hours ago. 7 Replies

It's been a while since there were any posts relating to this, I can'tfind much information at all.Recently I found a breast lump, had a lumpectomy and was toldafterwards that it was a grade3 cancer. Despite complete removaland no spread to lymph…Continue

Tags: radiotherapy, chemotherapy, Cancer

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Latest Activity

Silkybill replied to NM-Myra's discussion balance
" "
40 minutes ago
Lute replied to Sp's discussion Ayurveda & Punchakarma
"I don't know that other cultures or societies do see the health care in their own society as being best. Lots of people emigrate or travel in order to get access to, in particular, Western health care."
3 hours ago
oblidioblida replied to Sp's discussion Ayurveda & Punchakarma
"I would look first to see if you can get the same treatment closer to home. But other cultures have had their own forms of medicine for hundreds of years I don't see why they would be any more or less likely to be safe and effective than…"
3 hours ago
Lute replied to Sp's discussion Ayurveda & Punchakarma
"I more or less agree with Eric. If you have spare money floating round, it would be an enrichcing cultural experience, and is unlikely to do any harm (unless you get Delhi belly...). However, if you're short of money or would make yourself…"
4 hours ago

Alan Thomas posted a discussion

Four additional screening tests to be offered to newborns in Wales

Four additional screening tests will be offered to newborn babies in Wales from early 2015. From early next year, “heel prick” blood samples taken from newborn babies will be tested for four additional metabolic disorders; glutaric aciduria type 1,…See More
4 hours ago
Barb updated their profile
5 hours ago
Stephanie left a comment for hopeless
"Hello, I am so glad you emailed.  The website is   Walking with Ataxia.  If you google Tom Clouse Ataxia his website will come up.  Either way you should be able to get the information.  After you have read about his…"
7 hours ago
hopeless left a comment for Stephanie
"Can you please  send me the information of the web for Doctor Tom Clause, thank you very much "
7 hours ago

Top Discussions 

1 Ataxia does not exist ?

Ataxia does not exist ?

Posted by Searcher on August 27, 2014

2 balance


Posted by NM-Myra on August 31, 2014

3 I just don't want to go anywhere!!

I just don't want to go anywhere!!

Posted by Joan Nelson on August 28, 2014

4 what were your first symptoms

what were your first symptoms

Posted by mommy_medic on August 26, 2014

5 my eyes are giving me problems

my eyes are giving me problems

Posted by gelu65 on August 28, 2014

6 Need advice

Need advice

Posted by Iwentdownunder on August 28, 2014

7 Please be careful of falls

Please be careful of falls

Posted by dick48 on August 29, 2014

8 Ideas To Create Awareness

Ideas To Create Awareness

Posted by Glitter on Butterflies on August 30, 2014

9 Ayurveda & Punchakarma

Ayurveda & Punchakarma

Posted by Sp on September 1, 2014

10 reading w/ shaky hands

reading w/ shaky hands

Posted by mas on August 29, 2014


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Blog Posts

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 8:35am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…


Adjusting and fitting in.

Posted by Taymay on August 25, 2014 at 5:37pm 5 Comments

I have freidriechs ataxia and have progressively been getting worse and worse. I have been dating the same guy for a year and some, hes seen me go from walking by myself to suddenly needing a walker and assistance with everything. I know this sounds… Continue

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