If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.
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for Wales RareDisease Day reception 2014
**** Able Radio **** http://www.ableradio.com/
The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
Hi it's my partner who has the ataxia, he's had it for about 2.5 years, he is now getting a lot more pain in legs, knees, back, shoulders, everywhere really, he keeps saying tts the knocks he used to take years ago playing American football and…Continue
Hello dear group,Does anyone have recurrent ataxic episodes but clean brain and spine MRI's?Both of my attacks have happened 2-10 weeks post flu. The first attack (2 years ago)lasted 9 months, this attack (4 months ago)has been more disabling, can't…Continue
I feel like there is definitely a learning curve and necessity for a certain level of observational skills to be fully supportive of someone with ataxia. I know my boyfriend gets frustrated with his friends and family a lot, and even me sometimes,…Continue
I'm wondering if anyone else has this problem and what you do about it. I can walk for a bit in my house unaided. On short trips out i use a roller. At the mall or longer trips like the grocery store i use a wheelchair or scooter. I find as i get…Continue
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