Living With Ataxia - Online Support Group

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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

Fatigue

Started by gelu65 in General 33 minutes ago. 0 Replies

I find that I just have no more energy and am wondering if anyone knows of ways to boost the energy, I just need to be able to weed and do minor things but am really stuck.I asked my doc a couple of years ago about low dose stimulants and got shot…Continue

Looking for a magic wand

Started by slippery in General. Last reply by Julie in Colorado 3 hours ago. 11 Replies

Jack here I am going to ask my family doc about vitamins  including  cannabis  that might help the pain and balance from the disease .  Has anyone got positive results from pills?    thxContinue

Make your voice heard in the consultation on the Welsh RareDisease Implementation Plan

Started by Alan Thomas in General on Monday. 0 Replies

Make your voice heard in the consultation on the Welsh RareDisease Implementation Plan -…Continue

Tags: Welsh, on, RareDisease, Implementation, Plan

Muscle relaxers?

Started by Tiffinay in General. Last reply by PG yesterday. 7 Replies

I have a terrible time getting comfortable at night and can't usually fall asleep for a couple hours. After I started taking these muscle relaxers prescribed by the neurologist I get a great nights sleep. So after a couple weeks on them I noticed a…Continue

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Latest Activity

gelu65 posted a discussion

Fatigue

I find that I just have no more energy and am wondering if anyone knows of ways to boost the energy, I just need to be able to weed and do minor things but am really stuck.I asked my doc a couple of years ago about low dose stimulants and got shot…See More
33 minutes ago
Julie in Colorado replied to slippery's discussion Looking for a magic wand
"Judita, I have regular blood tests that show what my levels are. If it's in my blood it's getting to all the parts of my body, not just my hair.  Since I have Celiac Disease I've gone a long time (decades perhaps) with far too…"
3 hours ago
Ellen commented on Iwentdownunder's blog post Check in...
"Hi Gina! We got my European Walker from a Medical Equipment store in Paris. It was going to cost more to rent it for 2 weeks, than buy it. All I can tell you is that it's a godsend for me. Without it, I couldn't be out w/ my Rollator more…"
3 hours ago
gina commented on Iwentdownunder's blog post Check in...
"SO  AFTER  READING  ALL THESE  VERY  GOOD  TIPS,  I'M  WONDERING  ABOUT  WALKING  SHOES...FLAT  SHOES  MAKE  ME  FALL...CAN'T  WEAR  TOO HIGH …"
4 hours ago
FightMS commented on Iwentdownunder's blog post Check in...
"I gave up my heavy big purse two years ago because it threw me off balance.  Wind throws me off balance even without a purse.  I live only in cargo pants or cargo capris.  There are pockets on the legs for my keys, pedometer, and…"
4 hours ago
Ellen commented on Iwentdownunder's blog post Check in...
"Just focusing on cane and balance for now... I have an industrial strength cane (stainless steel)... Canes are inherently dangerous; you think you are safe, but you are not. I only use a cane for small spaces or when I have an arm to hold on to, as…"
5 hours ago
Iwentdownunder commented on Iwentdownunder's blog post Check in...
"Thanks for all the ideas."
8 hours ago
slippery replied to slippery's discussion Looking for a magic wand
"Thank you so much Jeannie Your common sense approach gave me a plan to start treating  my  disease the same way as you did  "
8 hours ago

Top Discussions 

1 SCA type 6

SCA type 6

Posted by Bert on April 18, 2014

2 Info...

Info...

Posted by Iwentdownunder on April 17, 2014

3 meds

meds

Posted by Optimistic on April 17, 2014

4 Looking for a magic wand

Looking for a magic wand

Posted by slippery on April 21, 2014

5 Muscle relaxers?

Muscle relaxers?

Posted by Tiffinay on April 20, 2014

6 Neurological Disorder Project for School!  Need Your Help!

Neurological Disorder Project for School! Need Your Help!

Posted by Meequalshopeorg on April 20, 2014

7 Does anyone have cerebellum ataxia caused by Mutiple System Atrophy ?

Does anyone have cerebellum ataxia caused by Mutiple System Atrophy ?

Posted by Debora Warner on April 7, 2014

8 "Keeping Positive" broadcast on BBC TV for International Ataxia Awaress Day 2006

"Keeping Positive" broadcast on BBC TV for International Ataxia Awaress Day 2006

Posted by Alan Thomas on April 18, 2014

9 Pupils not dialating equally...

Pupils not dialating equally...

Posted by Julie in Colorado on May 9, 2013

10 Sheffield appointment

Sheffield appointment

Posted by jason spencer on September 19, 2013

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Blog Posts

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Posted by Iwentdownunder on April 22, 2014 at 3:44pm 13 Comments

Hope everyone had a blessed Easter! I emailed my Crohn's doctor to see if he would refer me to a doctor at the movement disorder clinic here in Nahville. I found one via The Ataxia Foundation website, so I'm waiting to hear back. My mom took me to a… Continue

Brain Health Fair - April 26th at Philadelphia Convention Center

Posted by Michael on April 22, 2014 at 9:25am 0 Comments

The National Ataxia Foundation will have a booth at the Philadelphia Convention Center this Saturday from 10-4.  The Brain Health Fair is FREE and open to the public.  Just about everything that goes on between your ears will be represented…

Continue

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