Living with Ataxia

We're here for your support.

LivingWithAtaxia.org is an online support group for those living with hereditary or non-hereditary ataxia.

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In The News

1/23/10: LivingWithAtaxia Featured on SavantMD.com
8/31/09: LivingWithAtaxia Mentioned on About.com
8/12/09: OrganizedWisdom.com's Favorite Ataxia Community OrganizedWisdom.com.

Members

  • Shane Bratby
  • Kati
  • Patsy
  • ceri
  • Marie Turner
  • Lit Smith
  • Darran Winfield-Stanesby
  • Ironside
  • annette bond
  • Ben Munoz
  • Carol Gow
  • Alan Thomas
  • melonie
  • melissa krom
  • Linda
  • Sandra Desrosiers

Your Community Managers

Kati
Alan Thomas
Ben Munoz
Scott Orn

Ride Ataxia

NorCal Jersey

Radio Blog

Row the Atlantic (AUK)

Oh, come on!!!

Day 62 - Less than 300 miles to go!

DONT STOP ME NOW

Candle, Candle, Multi ended Candle

Fuzzy, Head and Blind Chatterbox

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This community is part of the Ben's Friends network of patient communities.
Learn more at bensfriends.org.
 

Latest Activity

Shane Bratby added a photo
shop
16 minutes ago
Kati added a discussion
Ablequip Wheel-link
Sometimes when you go out on a mobility scooter, its difficult if you have limited walking ability and there are tight spaces at the opposite end.  Do you take scooter and try and manage with stick/crutches or do you get someone to take you with man…
2 hours ago
ceri added 7 photos
3 more…
16 hours ago
ceri updated their profile
16 hours ago
2 members updated their profile photos
16 hours ago
Marie Turner replied to Bones's discussion 'Does Ataxia change your thought process?'
Hello Luckily my ataxia has only affected my mobility,handwriting and speech. The worst is my balance. However ironically for the firsttime in my life I feel emotionally balanced. I have always struggled with concentration but always came up with th…
16 hours ago
Carol Gow left a comment for Lit Smith
17 hours ago
Patsy replied to Bones's discussion 'Does Ataxia change your thought process?'
I have always found it difficult to maintain concentration - since diagnosis and on reflection I think this could well be due to the difficulty of tracking messages from cerebellum. As I have got older, [I am 67 now] everything has become slower and…
18 hours ago
Alan Thomas left a comment for Darran Winfield-Stanesby
20 hours ago
Darran Winfield-Stanesby added 2 photos
20 hours ago
Lit Smith left a comment for Lit Smith
20 hours ago
Ironside and Alan Thomas are now friends
20 hours ago

Blog Posts

Arif Ansari

Financial Stability

Posted by Arif Ansari on March 4, 2010 at 12:10pm — 3 Comments

Ben Munoz

Ataxia Spinocerebellar and Ataxia Telangiectasia Qualify Immediately for U.S. Social Security Disability Benefits

Posted by Ben Munoz on February 20, 2010 at 2:00pm

Alan Thomas

Penwest Announces Initiation of Phase IIa Clinical Trial of A0001 in Patients With Friedreich's Ataxia

Posted by Alan Thomas on February 18, 2010 at 2:10pm

Forum

Kati

Ablequip Wheel-link

Started by Kati 2 hours ago.

Bones

Does Ataxia change your thought process? 4 Replies

Started by Bones. Last reply by Marie Turner 16 hours ago.

Kati

Best & Worst of Living With Ataxia 10 Replies

Started by Kati. Last reply by Kati 1 day ago.

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