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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.

Forum

Phase 2 Trial with Reata Pharmaceutical's RTA 408

Started by sunny8088 in General 2 hours ago. 0 Replies

http://www.curefa.org/active-clinical-trials/reata-phase-2-trial-for-rta-408Ages: 18-40 at CHOP; 16-40 at Emory, Ohio State University, University of Florida,…Continue

Cycling for FA Research and Awareness From the USA to Ireland

Started by Alan Thomas in General 19 hours ago. 0 Replies

Cycling for FA Research and Awareness From the USA to IrelandOne of the main symptoms of Friedreich's ataxia (FA) is loss of proprioception or knowing where your arms and legs are in space without looking at them. This causes loss of balance and…Continue

Tags: the, USA, to, Ireland, From

has anyone tried Botox for Ataxia?

Started by Karen Ann in News, Research, and Clinical Trials. Last reply by Patsy on Tuesday. 3 Replies

I am curious if anyone has tried Botox for Ataxia.  Did it help, where you able to recover control of your affected limb?  Did you experience any negative affects?Continue

Stiffness

Started by Carlous Bobo in General. Last reply by FeelingOurWay Jun 25. 2 Replies

I exercise 3× a day and the stiffness in my knees and legs will not give me any relief. Also I am afraid to go down steps but I can go up.Any ideas *?

Cerebellar ataxia

Started by Carlous Bobo in General. Last reply by Max on Saturday. 8 Replies

I fad CA for 6 years now and I cannot get rid of the leg and knee stiffness. It never give me relief no matter how much movement and exercise I do. Is anyone having this issue and if so what are you doing to help.

MSA

Started by Jacob Nicholas in General. Last reply by rose Jun 24. 1 Reply

Hi All. Does anyone out there got cerebellar ataxia (multiple syndrome atrophy) MSA. How long, what are symptoms you have n how you dealing with it. Anyone from Asia or Singapore. Rgds Jacob

Looking for possible connections

Started by Beryl Park in General Jun 23. 0 Replies

I put something similar on Ataxians in Canada.Although diagnosed as Idiopathic SCA I've been told I have links with the recently discovered gene SYNE-1. This is said to be French Canadian in origin.My grandmother corresponded with 'possible…Continue

Is Ataxia Contagious

Started by barb1228 in General. Last reply by Ozzy Jun 22. 3 Replies

For those of us with non-genetic forms of ataxia, has it ever been passed onto a family member, like a spouse?  While all health care people tell me that Ataxia is not known to be contagious, I can't help feeling that I caught it from an…Continue

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Ben's Friends Partners with Rare Disease UK

Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.

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Latest Activity

Nancy commented on Earlene Watson's blog post people that don't accept your ataxia
"A disappointing aspect of some is to Blame the Victim.  People did it for years with rape victims. Indeed, even in what one would hope were more 'enlightened' times and even with the amount of education available in regard to…"
1 hour ago
neknoBF left a comment for LifeGoesOn
"Hello! If you would like to ask questions or introduce yourself, feel free to open a discussion. Best wishes and welcome to the group. :)"
1 hour ago

Moderator
Madere (dancermom) left a comment for LifeGoesOn
"Welcome, LifeGoesOn, to this supportive community. Feel free to open a discussion to introduce yourself or ask questions. Best wishes!"
1 hour ago
LifeGoesOn is now a member of Living With Ataxia - Online Support Group
1 hour ago
sunny8088 posted a discussion
2 hours ago
BWGreen commented on Earlene Watson's blog post people that don't accept your ataxia
"I was diagnosed with an unspecified SCA 6 years ago - since then I (and others around me) have noticed things getting worse.  Some around me I tell what I have - others can think what they want, since I don't really care.  If someone…"
3 hours ago
Anna liked Alan Thomas's discussion Cycling for FA Research and Awareness From the USA to Ireland
4 hours ago
Earlene Watson liked Alan Thomas's discussion Cycling for FA Research and Awareness From the USA to Ireland
4 hours ago
 
 
 

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    International Ataxia Awareness Day is September 25 

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