Living With Ataxia - Online Support Group


If your family has been affected by Ataxia, consider Living With Ataxia Support Network your second home.


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What is Ataxia?

The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.


Spinal Taps

Started by Searcher in General. Last reply by Ozzy yesterday. 13 Replies

Is there any validity in having repeated spinal taps , had one in 2012, 2013 and and in May all clean . Now this new Neuro wants to do one ASAP . Have spinal taps helped any of you figure out whats going on ?I am worried he is just doing the same ol…Continue

I want one of these

Started by Cynders in General. Last reply by Michael yesterday. 2 Replies

They are riding the Uni-Cub by Honda.  It looks cool and I want one!!!

magnaready magnetic closure shirt - UK supplier

Started by Sarah Millard in General. Last reply by Michael yesterday. 11 Replies

I have been following this company for a couple of years. At last there is a UK supplier, they do not stock women's yet but I have contacted the companys owner she is lovely and will be ordering some women's soon. If anybody wants a womans blouse…Continue

Tags: magnaready

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Rare Disease UK is the national alliance for people with rare diseases and all who support them. Members include individual patients and family members, clinicians, health professionals, researchers and industry. Rare Disease UK is campaigning for the development and implementation of a national plan to facilitate research and improve access to services and support for people affected by rare diseases in the UK.

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Latest Activity

Beryl Park left a comment for Crystal Tanner
"Hi Crystal, welcome to the group:-) You'll get a lot of help and support here, I hope you enjoy using the site :-) xB"
2 hours ago
Crystal Tanner liked John "JC" Colyer's photo
2 hours ago
John "JC" Colyer posted a photo
4 hours ago
John "JC" Colyer commented on John "JC" Colyer's group Affirmations and Quotes
""Tell everyone what you want to do and someone will want to help you do it" - - W. Clement Stone"
6 hours ago
John "JC" Colyer left a comment for Crystal Tanner
"Welcome Crystal, you will connect with good people here that will give you support and information , stay strong!"
7 hours ago
Crystal Tanner is now a member of Living With Ataxia - Online Support Group
7 hours ago
rose replied to Alex Downes's discussion Very mild ataxia
"Have you had an MRI of your brain, Sarah? I ask because I was diagnosed with Sporadic Cerebellar Ataxia (idiopathic/unknown cause) eleven years ago, although I had very minor symptom starting about eight years before diagnosis. It effects my…"
11 hours ago
Sarah replied to Alex Downes's discussion Very mild ataxia
"I am diagnosed with idiopathic cerebellar ataxia in July 2014, I have a "shopping trolley" walk but walk unaided, afternoons voice gets slurred and sounds drunk. I worked as a social worker until I lost my job due to ill health, falling…"
17 hours ago

Top Discussions 

1 How to tell people

How to tell people

Posted by runner on October 26, 2014

2 Very mild ataxia

Very mild ataxia

Posted by Alex Downes on October 27, 2014

3 Spinal Taps

Spinal Taps

Posted by Searcher on October 29, 2014

4 What is this?

What is this?

Posted by Iwentdownunder on October 25, 2014

5 Difficult Decisions

Difficult Decisions

Posted by lzaine on October 26, 2014

6 care givers ?

care givers ?

Posted by gelu65 on October 26, 2014

7 Portable walker??

Portable walker??

Posted by dlc on October 26, 2014

8 magnaready magnetic closure shirt - UK supplier

magnaready magnetic closure shirt - UK supplier

Posted by Sarah Millard on October 28, 2014

9 possible gluten problem

possible gluten problem

Posted by Daniel Graves on October 27, 2014

10 rarediseaseday


Posted by Alan Thomas on October 23, 2014


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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:26am 1 Comment

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…



Posted by nicky on October 13, 2014 at 8:12am 3 Comments

Hi everyone hope you'r all feeling as well as you can.

Last Tuesday i had blood taken for my genetic test so now i'm waiting to get the call to say come see what you've got , hopefully this will answer some questions for me & not leave me… Continue

 International Ataxia Awareness Day is September 25 

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