Living with Ataxia

We're here for your support.

Latest Activity

Lorraine Lerner commented on Lorraine Lerner's blog post 'interesting article on chantix'
hi Nati, You can get in touch with the national ataxia foundation ataxia.org. there is a forum on that site where you can talk with other ataxians. in the article I posted on chantix and ataxia the doctor doing this work is Dr. Z at the univ of sou…
4 hours ago
MG replied to jason conrad jones's discussion 'paraneoplastic cerebelar degeneratio'
I wonder where some law makers in the United States(or at least my state) get the idea that all disabled people have a medication that helps their condition. My food stamp case(welfare) worker said she did not believe I am disabled because I am not…
5 hours ago
Deborah Gray replied to Anna Heikkinen's discussion 'One Litre of Tears'
It is very sad and so familiar. I thank the Lord mine isn't progressing that fast.
6 hours ago
Carol Gow replied to Sarah Lacey's discussion 'Sleep'
Hello Sarah Jeanette started a discussion headed 'so tired'. It could be that some of the answers there will help. Regards and take care Carol
9 hours ago
Sarah Lacey added a discussion
Sleep
Hi Ive had Ataxia for 38 years now I'm on no medication but find it increasly difficult to relax or sleep. I find I am also on the go. Does anybody else have this problem?
10 hours ago
Sarah Lacey updated their profile
10 hours ago
Alan Thomas added an event
DANCING on WHEELS -- BBC TV at on Television Thursday nights
February 11, 2010 at 9pm to March 25, 2010 at 9pm
Dancing on Wheels BBC 3 Thursday @ 9.00pm (regional variations) 11-2-2010 visit BBC 3
12 hours ago
Kati replied to jason conrad jones's discussion 'paraneoplastic cerebelar degeneratio'
Are you saying the medications they give you can cause this paraneoplastic cerebellar degeneration? I'm assuming this results in Ataxia? Must look that one up when I get back from Inca's walk! I had problems when some epilepsy meds interfered with…
16 hours ago
Confidential and Patricia Naylor joined Living with Ataxia
yesterday
nati cepeda commented on Lorraine Lerner's blog post 'interesting article on chantix'
hi, i live in tampa fl. like which ataxia foundation? i would b so happy if they can.
yesterday
Kati replied to Kati's discussion 'Involuntary movements'
After watching several videos on dystonia movements I don't think it is that. I had found a good explanation of why ataxia can cause jerkyness rather than the tremor but i lost it again. I think you are right MG about the overshoot thing. I find if…
yesterday
MG replied to jason conrad jones's discussion 'paraneoplastic cerebelar degeneratio'
If is frustrating to do the best I can to stay as healthy as I can and then if a medication or treatment seems to make me feel worse, oh well, I am just a patient and I am nothing compared to the doctors and medical people. Even if something is maki…
yesterday
M.G.Rosales replied to Kati's discussion 'Involuntary movements'
I don't think those movements are dystonia but ataxia as the damage in the cerebellum causes dysmetria and it is the undershoot or overshoot of your intended position so it takes a few movements to pick something up,etc as you miss the target .....…
yesterday
Carol Gow replied to Carol Gow's discussion 'Emotive'
Hello Lit I am pleased to read you like dancing. I loved it and I don't mind admitting it. I have thought long and hard about which dance you could try next. It is very difficult because I don't really know what you can do. Latin I would think is ou…
yesterday
Alan Thomas replied to jason conrad jones's discussion 'paraneoplastic cerebelar degeneratio'
Is that Progressive Supranuclear Palsy ?? I went to the PSP seminar, last year PSP
yesterday
Lorraine Lerner commented on Lorraine Lerner's blog post 'interesting article on chantix'
hi Nati, doctors seem interested in studying ataxia that runs in families. maybe they'd be interested in you along with your sister. I would get in touch with an ataxia foundation and explain your situation. maybe there's something they can do for…
yesterday
Fiona Elizabeth Bunce added a photo
A Froggie went a waving'o
yesterday
louise replied to Kati's discussion 'Involuntary movements'
When i'm ataxic I have very jerky movements, it's like there's an invissable string attached to my limbs that stops my limb doing what I want it to do!. It often takes many tries till I manage what I'm trying to do. This happens with arms and legs.…
yesterday
jason conrad jones replied to Kati's discussion 'Involuntary movements'
hi kati i do have involuntary jerky movements too i have been put on haliparodol which is used for mentally ill patients it controls some chemical in the brain it works fror me lynn says baclofen makes some fol;ks very floppy as all the muscles in t…
yesterday
jason conrad jones added a blog post
anyone heard of remap wolverhampton ss got them out to lynn when she was with child they do adaptations to cots and prams, there is also trhe dppi (disabled pregnancy international they do all knids oif publications from nappy changing to finding a…
yesterday

Blog Posts

jason conrad jones

has

anyone heard of remap wolverhampton ss got them out to lynn when she was with child they do adaptations to cots and prams, there is also trhe dppi (disabled pregnancy international they do all knids oif publications from nappy changing to finding a adapted cot for yourself and baby

Posted by jason conrad jones on February 7, 2010 at 7:35am

Kati

Adapting and stuff!

Glad the snow has cleared, although someone told me more is forecast, hopefully it will only be light again and won't settle for long.



I couldn't remember whether pancake Tuesday was last Tuesday or next Tues but they were selling the stuff in shop to make them so I got some stuff and made
them today (just in case I missed them tuesday.. lol) If its this
Tuesday coming, I'll have them again for lunch on Tuesday!


… Continue

Posted by Kati on February 6, 2010 at 6:23am — 1 Comment

Alan Thomas

*** Row the Atlantic***

Keep up with the progress



http://blog.mailasail.com/redarrow



map of their voyage


Posted by Alan Thomas on February 5, 2010 at 8:11am

Alan Thomas

Hopkins Medicine Ataxia Symptoms

just found on hopkins medicine

Cognitive and Mood Problems - In addition to motor dysfunction, patients with cerebellar degeneration may have cognitive and emotional difficulties. The cerebellum plays a role in some forms of thinking. Patients with cerebellar atrophy may have impaired recall of newly learned information or difficulty with “executive functions” such as makin… Continue

Posted by Alan Thomas on February 3, 2010 at 2:18pm

Alan Thomas

Row the Atlantc

Dont forget, to keep up with the boys.

read their blog
RTA BLOG

Posted by Alan Thomas on February 1, 2010 at 6:29am

Forum

jason conrad jones

paraneoplastic cerebelar degeneratio 4 Replies

Started by jason conrad jones. Last reply by MG 5 hours ago.

Anna Heikkinen

One Litre of Tears 1 Reply

Started by Anna Heikkinen. Last reply by Deborah Gray 6 hours ago.

Sarah Lacey

Sleep 1 Reply

Started by Sarah Lacey. Last reply by Carol Gow 9 hours ago.

 
 

About

Ben Munoz Ben Munoz created this Ning Network.
Create a Ning Network! »

Badge

Loading…

Get Badge

Are you a "NOMAD"?
Welsh Company, producing "Trendy" wheelchairs
NOMAD
European design award
***** WIN *****
for nomad
DME

A Website raising funds for Ataxia uk while raising awareness, of Ataxia
theincrediblewebsite

Rowing for Ataxia UK

The Challenge...
Richard Hume and Tom Barnes are taking part in the Woodvale Challenge Atlantic Rowing Race, commencing 6th December 2009. One Ocean, One Goal, 2500 Nautical Miles of open sea.

Richard and Tom are raising money for Ataxia (Ataxia UK) which a close friend of ours, James Downie, unfortunately suffers from.
http://www.rowingtheatlantic.com
DONATE
http://www.justgiving.com/rowingtheatlantic/
 

© 2010   Created by Ben Munoz on Ning.   Create a Ning Network!

Badges  |  Report an Issue  |  Privacy  |  Terms of Service

Sign in to chat!