Ataxia Support Network
The word "ataxia", comes from the Greek word, " a taxis" meaning "without order or incoordination". The word ataxia means without coordination. People with ataxia have problems with coordination because parts of the nervous system that control movement and balance are affected. Ataxia may affect the fingers, hands, arms, legs, body, speech, and eye movements. Ataxia is often used to describe a symptom of incoordination which can be associated with infections, injuries, other diseases, or degenerative changes in the central nervous system.
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Getting Started on Discourse
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
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Who is Bens Friends
New Member Introductions
New members, start your experience here. Introduce yourself and share your story. Let us welcome you
Introduction - geowisc
General discussion about topics related to Ataxia
Losing strength in legs
New site layout
News, Research, and Clinical Trials
Information presented here may no be peer reviewed or authoritative, and should not be used as a basis for treatment recommendations. No endorsements by Ben's Friends are implied.
Ataxia on stage at Doctors 2.0 & You conference in Paris
Ride Ataxia’s Kyle Bryant to Be Keynote Speaker at Exposition
Welcome to the Complementary Therapies forum! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with PsA. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. Treatment with medications is the only evidence-based treatment for Psoriatic Arthritis, but for some, treatment of the disease means more than medication alone - this is the place to discuss healing modalities that can complement medical treatment
Balancewear Vests and Spinocerebellar Ataxia 3
Second vest try-out was not helpful. Chinese herbs?
Motion Therapeutics Vest
Feeling down? Need to rant? This is the place. Let it rip, we are here to listen
Friedrich Ataxia will this be the last summer Nenas mobile
Suicide Hotline Numbers
Parents of Ataxian children
Prayer and Healing Energy Requests
A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.
Prayer & Healing
Recommend a Doctor, Therapist, or Clinic
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
Ontario, Canada Specialist for Cerebellum
Recommend your Favorite Doctors in the MidWest
This is our new chat. Just reply. If you want to go to a private chat simply click on the mebers avatar and start messaging. You can invite others to join you. For now we don't have a "who's online" box but hope to add that feature soon!
News from Bens Friends -
Events of interest to Ataxia Patients. Just email to have the staff add your event.
Discussion about this site, its organization, how it works, and how we can improve it.
Pre 2014 (Old Site)
Walking poles instead of walking sticks
New here And wanted to know id EA2 Progesses